幾點--博物館的MEMO

Fwd: 香港民間博物館

嗯，這封信的博物館概念，我喜歡-以示威文化的展演尋求開啟對話的

一種可能。聯想起在當代藝術館職班時，曾看過一個馬來西亞藝術家的作品，他手縫一件蒙頭連身的長袍，袍子的素材來自該國內蒐集來的各種組織徵章併湊而成。作品所丟出來的其中一個問題是，現代社會中，人類究竟被多少的組織規章所遮蔽…。唔，以上是題外話>"<
回到樂生，確實也不斷有一個詞彙是被我自己反覆提出的--「關係」！透過物件以及曾發生過的事件所呈現出來的個別故事，其中可以講的正是一種人與人之間的關係(網絡)。比如，病醫之間的關係、弱勢者與社福社運工作者之間的關係、漢生病人與(新聞、小說和電影)各類文本之間的關係，當然也有政府與弱勢者之間的關係等等…。這些想法，其實是把想像拉回到不斷被提及的"人權"這件事情上面，我們到底如何可能透過展覽這種語言，來傳遞這個抽象的概念？例如，一頂漢生人權立法的帽子、一件樂生t-shirt，這些物件之於樂生院的院民來說，和院長送給阿伯們的筆，以及慈濟人或老殘協會逢年過結送的大小禮，甚至是每個舍前不同人出資蓋的涼亭…，透過物件所呈現出來的，都是些什樣子的人與人關係／聯結呢？我們現在所說的「培力」，和從前人說的照顧關心，甚至"陪伴"的立場，是否有細部的異同？或許，這些想得仍太龐雜和樂生本位了，不過偶爾仍會問自己，如果，我們(各種各樣人)未曾有過對待弱勢者目光的反省，這個空間就算被保下來，也是種諷刺吧：）。所以，樂生博物館裡呈現的，會是以樂生這個空間所形成的某種文化嗎？如果是的話，會有些什麼呢？

英國英國ILEP (the International Federation of Anti Leprosy
Associations)傳來的信

再次地提醒:

以下是Anita 轉給我從英國ILEP (the International Federation of Anti Leprosy
Associations)傳來的信 是這組織的General Secretary 寫的
我將他提出的問題重點翻譯如下:

他一直關注樂生的情況並且也寫信給他們住北的辦事處其他他會員組織要求相關的協助
他明白現在的重點在於立即撤離的威脅,但他強烈的建議你們的組織考慮勿使用Lepers一詞
因為Lepers一詞無法被接受 , 國際上認為改變這種語言使用是要改變對受此病影響的人污名化及歧視的態度的一個重要的部份,

既然你們已寫信給世界各地的人並向聯合國請願
你們應該加強對這種污名的對抗並注意不要使用這樣的措辭

我建議你們使用 "people affected by leprosy" (or Hansen's disease).
如果你們成功使此事件普及各媒體
確認媒體不會以負面態度重複使用lepers一詞使此種污名永久持續是很重要的

我們必須保握每一次機會挑戰這種污名化和侵犯人權的措辭

Hi. I am the General Secretary of ILEP (the International Federation of Anti Leprosy Associations) based in the UK but with 14 Member associations around the world.

I have been following the situation regarding Lo Sheng with great interest. I have written to the Taipei Representative's Office in the UK to advocate on behalf of Lo Sheng and have also written to all our ILEP Members asking them in the spirit of solidarity to also take up the issue with the relevant authorities in their countries.

I know the issue of the moment is one of the immediate threat of eviction but I would very strongly advise you to consider changing the English name of your organization. The use of the term "leper" is not acceptable and indeed the use of this term is internationally recognized to be a key part of the problem in changing people's stigmatizing and discriminating attitudes toward people affected by this disease. Since you are writing to people around the world and indeed taking your petition to the highest UN authorities I would suggest that you can greatly strengthen the fight against stigma by specifically avoiding use of these terms. I would urge you to always refer to "people affected by leprosy" (or Hansen's disease). If you succeed in getting good media coverage (and I hope you will) it will be so important to make sure that the media do not perpetuate the stigma and negative attitudes by continuing to repeat the term "lepers". We all must take every opportunity to challenge the language and terminology which in itself is such a large part of the problem of stigma and abuse of rights.
>
>
>
> Good luck with your efforts to reach a satisfactory outcome which respects the rights of the people of Lo Sheng.

Yours sincerely,
Douglas Soutar
>
> Mr Douglas Soutar
> General Secretary
> International Federation of Anti-Leprosy Associations
> doug.soutar@ilep.org.uk
> www.ilep.org.uk
> Tel: + 44 (0)20 7602 6925

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